Replies to I have had shingles for 6 years on my buttocks. Which left me with CRPS. It…

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Brain & Nervous System | Last Active: Dec 5 10:54am | Replies (11)

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@karel

I have had shingles for 6 years on my buttocks. Which left me with CRPS. It finally left in 2019. with some bouts of burning in legs, but that was it until now. I recently had to have 3 cervical epidurals for nerves pressing on my neck to my arm. Now the burning on my buttocks came back. No shingles, no redness, just hot.

I have found 2 things, that help Pennsaid Oil 2% . Its very expensive, insurance may cover it, if you do a prior authorization, and then Aloe Vera Gel, pure gel . Walmart sells it for $4.95 a 32 ounce bottle. It seems to
keep the burning away or calmed down right away but it returns . So you must keep on applying it.

I wish all who have CRPS pain free days.

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Replies to "I have had shingles for 6 years on my buttocks. Which left me with CRPS. It..."

barbbielor | @barbbielor | Dec 5 10:54am

Thank you for your suggestions about burning pain. I have ad CRPS at least for 16 years. Mine started afer poor foot surgery and has spread from right foot to left foot and has moved up left leg to left buttock. I have recently been dx with lyphedema. I just read CRPS can cause lymphedema! Lyphedema treatment is pathetic! No one doctor deals with it a a whole. I have seen a vascular surgeon for my legs and an OT for my arms. I believe I have it on the right side of my face and so I have an appt with my ENT! My PT feels there is lymphedema at the base of my neck and right side of sacrum. I have no clue who will deal with those. Weight gain is erratic. I use a pump on my legs two times a day for an hour each time. I recently bought an Ellipse to help with circulation. I have been waiting for two years to get my power chair replaced. My current chair is 7 years old and in need of help. Looking at finally getting info to Medicare after Workers Comp denied it. Such a mess and so time consuming. Thankfully Medicare does provide power chairs for people having CRPS.

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