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Small Fiber Neuropathy, Sjogrens, Hashimoto's

Autoimmune Diseases | Last Active: Oct 3 4:11pm | Replies (38)
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@suetex

Penn, I can see that we both have lots of questions. I will try to answer the ones I can. Coincidentally, I just had my second treatment with Retuximab 6 mos after the last one in April of this year. Retuxiab is a monoclonal antibody that helps the body clear out B lymphocytes that are thought to be part of the problem for autoimmune folks. Sjogrens is thought to use B lymphocytes as part of its attack on our bodies. It helped me enough to repeat, with little to no side effects so worth a repeat. IvIg is where they collect healthy gammaglobulin from lots of healthy people and give it to you. It is for all autoimmune people. They have been using it for over 30 yrs and are just now figuring out how it works.
Sicca is the collective name for the conditions of dry eye, mouth and skin that are caused by Sjogrens.
The treatments you mention, I do not know what they are. Could you explain them?

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Replies to "Penn, I can see that we both have lots of questions. I will try to answer..."
penn | @penn | Sep 27 8:45pm

suetex,, THANK YOU!!!, MY Rheumatologist did not want me to have the IVIG and the Retuximab, she concerned because my Sjogren's is worse. I'm going to speak with her again about it. Did you ever look into family background with Autoimmune issues? I would love to find out. As of now no one family had it going back to 3 generation. What makes it worse, failed back surgery so pain all the time. I have a pain pump implanted by my Pain Management DR. Helps Cervical Spine.
Your very informative, THANK YOU AGAIN!!!!

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