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Osteoporosis & Bone Health | Last Active: 11 hours ago | Replies (29)
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I have been on Prolia for 13 years and have developed osteonecrosis of the jaw- not fun! I caution everyone to think hard about using this drug. I am now off of it and am seeing a Naturopath doctor to heal and then build the bone I need through diet and nutrition.
Has anyone gone off Prolia and NOT gone on Forteo to repair the effect of Prolia?
Replies to "I have been on Prolia for 13 years and have developed osteonecrosis of the jaw- not..."
Hello @debbclay and welcome to Mayo Connect. I am sorry to hear about the osteonecrosis that developed. Are there any dental treatments that can repair this?
I'm also wondering if during the 13 years if treatment with the Prolia, If you had increase in your bone density in other places?
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@debbclay according to "Great Bones" (McCormick), Dr. Ben Leder's YouTube video and both my endocrinolgists, patients do not do Forteo after Prolia: it is not effective.
The usual course is Reclast after such a long time on Prolia. If you have stopped Prolia and have not started Reclast, then, according to my sources and doctors, your fracture risk is very high.
Prolia makes osteoclasts (that break down bone) go dormant, so to speak, and when the drug is stopped they all come rushing back to work.
I plan on using diet and exercise as well as supplements when I finish meds, but I would not personally rely on those after Prolia from what I have been told. Do you have an endocrinologist you trust?