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How did you cope with the side effects tapering off prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Sep 26 4:21pm | Replies (187)Comment receiving replies
I had to be completely off Prednisone before I noticed any changes to the bruising and scars from tears to my skin. The skin on my arms and legs is still thin and the dematologist recommended using Gold Bond Age Renew Retinol Overnight Lotion and it has helped. I was on Predisone for about 5 years. The worse side effect from it was necrosis and I needed to have several Joint replacements (both hips and my right shoulder). It has effected my spine and I have Multilevel degenerative disc disease with compression of the nerve root, Disc bulge on several discs. So I''m still suffering from the drug. Get off it as soon as you can, I feel the doctor put me on way too much prednisone, but they have repeatedly said they didn't want me to go blind. I am very careful about falling. The only thing that has helped with the back pain is water aroebics, Get off of it ASAP.
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Your story reminds me of a GCA patient I took care of in the hospital. She had steroid induced psychosis and wouldn't take her prednisone. She would hit people who got anywhere near her with her prednisone dose. I informed her doctors that she wouldn't take her Prednisone so they told me to tell her that she would go blind if she didn't take her Prednisone dose.
If telling her she would go blind didn't work, I was supposed to restrain her and put an IV in to give a steroid dose to her that way. I didn't think I could get an IV in her since her skin and veins were so fragile. I was also afraid her bones would break if I tried to restrain her.
Her daughters were at her bedside and said she wasn't ever like this and they said she wouldn't hurt anyone. She was so frail she wouldn't have hurt me if she did hit me.
The patient went a couple of days without any Prednisone and her psychosis cleared up. She agreed to take a smaller dose of Prednisone. She didn't go blind. I told her doctors that she knew she couldn't take as much prednisone as they wanted her to take!