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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@loriesco

P.S. @johnbishop and @denisefraser - I was thinking, in summary, that Denise's problem stems from something with the teeth and surgery and not something a nerve doctor can attend to. Medicine just treats symptoms and will not resolve and may make worse the underlying condition if it is still in the gums, jaw, roots. Therefore Denise should tell us to what extent the dentist who did the work has treated her, and if she has gone to an endodontist and some additional background. There is a lot I presumed. Also want to say I had issues with a crown on the left side of my face, which crossed to the right side bite because the crown caused the bite on the opposing side to be thrown off. It's called a "sprain." it took months to resolve the sprain and a couple of visits for bite adjustments. It has to go slow. Would also want to know if her bite has been adjusted at all. Also, what kind of dentist did the implants? I avoid at all costs dentists who promise and advertise cheap implants. They have to be done over a very long time. Get teeth pulled and wait 6 months for the implants. Anyone promising "single-day" implants could be the source of your problem. (dental not neurological.)

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Replies to "P.S. @johnbishop and @denisefraser - I was thinking, in summary, that Denise's problem stems from something..."
denisefraser | @denisefraser | Sep 26 2:44pm

I so appreciate the feedback today. The reason I was at the oral surgeon was originally because for some reason I had an 11mm opening in my gum exposing the jaw bone. This was on the inside below the wisdom tooth on the right side The surgeon explained that he needed to debride the bone slightly so that the gum would heal over this. I had infection at this site. He asked me if I had pain in my wisdom tooth. Realizing I am 62 years old and still had all my wisdom teeth. I said I could not tell He said , do you want me to pull the tooth? I said, I don't know. He did not explain to me what the possible repercussions could be. Ie. Nerve damage .

With my husband present, I said , I guess if there is a problem and you need to pull it, then you need to do what you need.

Had he told me there could be nerve damage, I would have said absolutely not.

I saw him again twice regarding the pain I was having after . Both times he said , there is no infection and it has healed.
I did go see my dentist and have him do an xray to see if there was anything left in the gum . There was nothing . I also saw a neurologist who did an MRI to see if there was a neuroma present. There was not. I also saw another dentist who did a cone beam CT. Nothing showed up.

At this point no one had answers. I also had complete bloodwork done at the hospital. No infections

I asked to be referred to an oral pain specialist in Edmonton. I also took it upon myself to see an oral pain specialist in Vancouver, BC. He diagnosed trigeminal neuropathy.
The oral pain specialist in Edmonton also diagnosed post traumatic trigeminal neuropathy. Neuropathy is different than neuralgia, as it is constant pain at the site
I hope this helps.

I will let you know when I hear from the neurosurgeon. My family doctor referred me to one at the hospital here Apparently he has written a 2 page letter to my doctor . He is unable to treat my case for some reason. I have an appointment on Monday with my doctor to discuss what's in the letter, and my next steps
Meanwhile I will be switching to trileptal over the next couple of weeks. Hopefully it is helpful

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