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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Welcome @denisefraser, Sorry to hear the oral surgery went sideways. I can't imagine how awful it is to have that happen and the ensuing struggle to find some relief. You might want to scan through the discussions on Trigeminal Neuralgia to learn what others have shared - https://connect.mayoclinic.org/search/discussions/?search=Trigeminal%20Neuralgia.

I think @loriesco and @serita may have some thoughts to share on your pain following oral surgery. @serita posted a similar discussion that might be helpful:
-- Shooting pains in the head after getting a tooth implant:
https://connect.mayoclinic.org/discussion/shooting-pains-in-the-head-after-getting-a-tooth-implant/.
Can you provide an update after you meet with the neurosurgeon?

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Replies to "Welcome @denisefraser, Sorry to hear the oral surgery went sideways. I can't imagine how awful it..."

@denisefraser and @johnbishop, I hope this message finds you,
(I get a little lost when responding to threads and replies!) after experiencing trigeminal neuralgia, I can substantiate it is the most awful pain! For me, it showed up like a throbbing migraine. Opioids which I already take for degenerative disc condition were the perfect solution to get me through the migraine like attack. It totally took me down for example an afternoon and then it would subside to a lower threshold pain only to return again in an unpredictable manner. This went on for a couple months I believe in everyone’s case in all matters there are reasons why these things happen. I believe they can be resolved , if we get to the bottom of the matter. But the bottom of the matter can be as elusive as hell. If you don’t know, women can have extra roots in their teeth, and it takes exploration of a specialist called an endodontist. When I was younger, I had a couple of these and so my really expensive dentist would have to send me to the even more expensive endodontist, where he would remove the extra that still remain in my gum. In addition, I had a kind of bone problem below two teeth in my gum where I had experienced to roots that died, or two teeth that died, and they had to be extracted there was something about the bone , which requires attention once every two decades and that causes pain. The filling in the root canal has to be removed and the infection that builds up after 15 or 20 years has to be bleached and then it can be refilled and voilà no more pain! The excruciating post surgical Pain was the worst I ever felt in my life. It’s the pressure that’s inside the closed wall while the infection heals. The pain is only controlled for me by opioids, and although my endodontist is the best of the best he did not believe in opioid prescriptions, so I was blessed that I had the prescription for my back And could use it for the teeth. I am 67 and I know after all these years that dental work means acute pain for me most of the time.
I experienced trigeminal neuralgia this spring, and I misattributed it it to the bone medication. I’m on Tymlos Because another gal @gently here had it and was on the bone medication. Turns out, coincidentally I broke my wisdom tooth up into the gum. When the tooth broke, the three months of intensive pain was done it circled the trigeminal nerve route, which had made it possible to isolate the location. I learned that, hairline cracks are not picked up by x-ray. I probably had some kind of crack in the wisdom tooth for a couple years. I go to the dentist routinely and it was not picked up even by the expensive dentists bizarrely the wisdom tooth below failed a month and a half later . Both were extracted both scared me to death and turned out to be nothing burger and only 10 minutes in the dentist chair and almost 100% pain relief within days. I want to suggest if you haven’t been to an endodontist that you go. Also ask about roots being left and unseen, and go to a specialist specialist to make sure there’s nothing infected or remaining inside the gum to heal. I know that soft tissue healing can take a couple months. I know that infections can be unseen in the gums. Looking back this was all causing me extreme sinus problems as well, which I could not explain understand or get rid of , it was because the cracks in the wisdom teeth were unseen, and bacteria was entering the gums and it was causing pressure which exerted itself on the trigeminal nerve route. It is no surprise that you’re a woman who ends up with this problem as women’s problem with their gums and roots and infections are under diagnosed and misdiagnosed. I think your body is telling you that something inside is exerting pressure on the nerve route so I would suggest going back to the dentist and making sure there’s no infections in your implants and they bleach the gums if needed. Let us know what happens! Good luck!

P.S. @johnbishop and @denisefraser - I was thinking, in summary, that Denise's problem stems from something with the teeth and surgery and not something a nerve doctor can attend to. Medicine just treats symptoms and will not resolve and may make worse the underlying condition if it is still in the gums, jaw, roots. Therefore Denise should tell us to what extent the dentist who did the work has treated her, and if she has gone to an endodontist and some additional background. There is a lot I presumed. Also want to say I had issues with a crown on the left side of my face, which crossed to the right side bite because the crown caused the bite on the opposing side to be thrown off. It's called a "sprain." it took months to resolve the sprain and a couple of visits for bite adjustments. It has to go slow. Would also want to know if her bite has been adjusted at all. Also, what kind of dentist did the implants? I avoid at all costs dentists who promise and advertise cheap implants. They have to be done over a very long time. Get teeth pulled and wait 6 months for the implants. Anyone promising "single-day" implants could be the source of your problem. (dental not neurological.)