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DiscussionDiagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
Replies to "Thanks gesmone1 and Teresa, I am surprised that Mayo Clinic, MD Anderson, Carcinoid Foundation and many..."
My husband has done this test twice now. He was provided with a list of food to avoid for 72 hours prior. We did our own research and found that multiple websites have recommendations to avoid food containing high levels of serotonin or those that may interfere with the assay. This includes caffeine, allergy and pain medications as well. Here are some websites we have found:
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/preparing-for-the-24-hour-urine-5hiaa-test/
https://www.mskcc.org/cancer-care/patient-education/24-hour-urine-collection-5-hiaa-test
https://www.ucsfhealth.org/medical-tests/5-hiaa-urine-test
https://netrf.org/for-patients/diagnostic-tests/5-hiaa-tests/