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biopsy for small nerve fiber

Neuropathy | Last Active: Oct 23 7:51am | Replies (44)

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@pah17

Have you found treatment that works?

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Replies to "Have you found treatment that works?"

For me, Tegretol (carbamazepine) takes away the burning pain. This was discovered by accident. You can read my story elsewhere here. After a lot of research, I’ve concluded that my type of neuropathy - which is idiopathic length-dependent small fiber polyneuropathy - has a cause (unknown) that responds to way Tegretol works. Since the cause of mine is unknown (my sister has developed it too but genetic testing is negative) it just took a lot of drug experiments to get to this point. For that reason, you need to have a close relationship with your neurologist. And ideally also a doctor at a teaching clinic ( I have UAB). Lots of good communication.