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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
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@splendrous

I have read on Mayo site that you refrain from eating certain foods and caffein prior to 5-HIAA test? If you have had that test, did you have dietary restrictions prior to the test? Thanks.

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Replies to "I have read on Mayo site that you refrain from eating certain foods and caffein prior..."
gesmone1 | @gesmone1 | Sep 26 7:01am

I have done this test twice and will do it again in December. I have never had diet restrictions.

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Teresa, Volunteer Mentor | @hopeful33250 | Sep 26 7:18am

Helle @splendrous

This question about how you should take this test would be best answered by the medical provider who is requesting the 5-HIAA. I have taken this test several times and I've never received instructions on dietary restrictions. However, like you, I have read about these restrictions from other sources. As I'm not a Mayo patient, I would check with your provider to be certain.

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