I just want to ring in to say that I am sad and angry that you are having this shocking and frightening experience, @gaylepc. It eerily mirrors that of my sister, who died 6 months prior to my diagnosis with and successful surgery (so far) for Stage I FIGO 1 endometrial adencarcinoma in January 2023. My reading and discussions with my oncology team members have led me to understand that the lungs are a frequent site for metastasis when there has been a recurrence. By that time (also 9 years later and after surveillance was no longer considered standard care), my sister had had a stroke that impacted her ability to advocate for herself, and her daughter had a very difficult time getting her team to consider that her breathing difficulties and coughing of blood had anything to do with her previously treated (stage I, radical hysterectomy, clean sentinel nodes) endometrial adenocarcinoma. But that relationship was finally discovered and she underwent radiation and chemo. Her life was extended for a year and she had time to say beautiful good-byes. For this reason, I have chosen to take any reassurances with appreciation and a tiny grain of salt, and will continue to seek surveillance as long as I am able, while doing what I can to reduce my chances of recurrence.

I'm so very glad that your team recognized that this is what's going on and can offer you a comprehensive treatment plan very soon. I trust and hope that your ability to self-advocate, as you have, will result in a much better outcome for you. I will be very grateful for whatever extent you are able and willing to share what plan you ultimately choose for your care and will be wishing you well with it on every level. Keeping you in my thoughts and cheering you on from here on, @gynosaur