I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine origin January 18, 2023. PET scan determined start was in my intestines,it also picked up something in my thyroid. Thyroid scan on Jan. 25, Biopsy on Jan31, Then Consult on Feb 6 2023 at Mayo Jacksonville, Dr tried to get me on the clinical trial, but I did not qualify due to a previous diagnosis of Prostate cancer.. I was told surgery was not an option, recommended Monthly injections they started February 16. 2023 Started with Lanreotide, for 3 months, they did not help with my Carcinoid Syndrome symptoms (hot flashes). Switched to ocreotide and have been on a 28 day cycle of 2 injections since then.. With hope and prayers that everything will work out for you….