Hello Shelly,
I was going to Columbia Presbyterian Hospital, NYC, If you live an hour to hours away it's worth going there. I live hour and half without traffic.
I don't remember what I told the Doctors but they told me they want to do a biopsy on my leg to find out if I have autoimmune disease, Came back Positive. Was sent to a Neurologist there. Than they asked other questions, sent to ENT, lip biopsy, positive for Sjogren's. Years later Neurologist sent me to a Rheumatologist. I saw 3 until I found the one I'm seeing now. I have to look on my computer to find the script she sent me so I can tell you. Leaving this site I hope I don't loose you. I pilocarpine for dryness, do you take anything for that? My husband asked her last week how bad it, she said severe. I was surprised but it's becoming too much. this dr. that Dr!!!! I should have asked, what do you mean, Why!!! One dr. I saw told me I don't need another appt because nothing more can be done!! That was encouraging!!!!!!! I don't know where you live but I have researched drs. try to find as much info. as I can. Most it works, not all the time. Let me know what you think. Have a good evening!