Hello again... So Lisa is about 2 1/2 weeks out of hospital after vulvolus repair and decompression.. she has had really difficult time adjusting mainly from her autism, trauma in hospital and is having " accidents", doesn't wish to go to br when asked, has 3 staff helping but she gets very aggressive etc
Having bms about every other day..
Not much progress with P T. trying to get her walking more..
As i looked over 198 pages 😳of hospital records i saw a " possible undiagnosed Hirsch sprungs disease, very uncommon in adults, then i saw connection with epilepsy ( which also was diagnosed at 32) and remember asking a dr in hospital if a trip to trauma center a few weeks before her admission for volvulus, for status epilepticus , 9 minutes seizure, then another in ambulance, a first for her, could be connected, he said yes . Something about intestinal nerves..
So more to digest ..
Im also on epilepsy support group having asked about Zonisamide which she took and seemed to cause 24# weight gain! Constipation? Causing impaction? Dr said no 😔Now on lamictal but do wonder if she's actually epileptic after all? Or her intestinal issue was triggering seizures?
Oh my shes complicated but has had so much over 48 years
Just seems more than ahe and i can bear anymore🥺
Care home wants to move her,after 15 years,only home she's ever known outside mine..my husband and i can't deal, he's 81, I'm 76
Really you'd think California so progressive in caring for disabled,not so .
So i need to post this to epilepsy group too how do i do that? . Thanks to all!!!