← Return to Breast Cancer and Neuropathy
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Breast Cancer | Last Active: Aug 25 5:00pm | Replies (42)
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Replies to "I @msovercomer and welcome to the Breast Cancer group on Connect. You'll notice that I moved..."
The plan post surgery was to take AIs for 5 years. It took 3 months before the side effects really hit me: joint pain and weakness in my hands, fingers and wrists, numbness & tingling, in addition to general fatigue, which persisted. After 6 months, I transitioned to the second AI, hoping for . some improvement. No change, so after being on it for 6 months and continuing to be miserable, I took the last AI, recognizing that everyone’s experience is different. I continued treatment for another 6 months and quit. I am now contending with elevated platelets and a recent diagnosis of Essential Thrombocythemia, which makes me ineligible to take Tamoxifen, because of the elevated risk of clots & strokes. I am now looking at the prospect of taking a Hydroxyurea, which is supposed to be well tolerated. We’ll see.