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Lance-Adams Syndrome aka Chronic Post Hypoxic Myoclonus

Brain & Nervous System | Last Active: Jan 12 9:28pm | Replies (6)
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@fawwazalenezi

Hello, My mom is diagnosed with Lance Adam’s syndrome since March 2024 after cardiac arrest. CPR was done after 15 minutes. Myclonic jerks happed after 1 day in ICU. She is partially treated with Levetiracetam, Valproic acid, and Clonazepam. And she is still under treatment at the royal free hospital (london). The doctor informed us that he will modify some of the medication doses and he may add Perampanel and remove Levetiracetam and increase the dose of Valproic acid and Clonazepam.

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Replies to "Hello, My mom is diagnosed with Lance Adam’s syndrome since March 2024 after cardiac arrest. CPR..."
Angela Sanders | @angelasanders | Jan 12 8:29pm

Thank you for your reply. It seems like your mother is receiving a straight forward standard treatment for LAS.
Although this condition is rare, I don’t think it will remain that way. It seems many more are surviving due to medical advancements and increased knowledge about and differences between acute and chronic PHM.
If you haven’t found it already, there is a Facebook Group for patients with LAS and caregivers. Search for : Lance-Adams Syndrome

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