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@anisoara

Hi, i’m 32 y.o. I got my first flare up of EN when i was 19 y.o, and i continued to get them every year since, for at least once a year and up to 3 times a year, sometimes the flare ups were worse than the other ones. I have done all sorts of blood tests, xray, biopsy and no one can find the underlying cause. What has always helped with the pain and inflammation is Aspirin, i would take the highest dose which i think is 325mg 2 tablets twice a day for no longer than 2 weeks, and it definitely helps, but it’s rough on the stomach. On my last doctor visit, i was prescribed SSKI solution, which i started taking .3ml/ 3 times a day, i can’t tell yet if it’s working since my flare ups just started a few days ago and are getting worse by the day and the SSKI i started taking the day before yesterday, so let’s see what happens, but i’m starting as well the aspirin since i’m in some serious pain. It does feel debilitating not knowing what’s causing this to begin with. I have noticed however that everytime i start taking some sort of suplement products that have a lot of different vitamins and minerals in it, it almost like a trigger for my flare up, but I don’t know if that’s accurate, it’s just my personal observation, maybe someone else can notice if they are doing something different right around the time when getting the flare ups, would really like to know. Thank you and hope this helps anyone else with EN.

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Replies to "Hi, i’m 32 y.o. I got my first flare up of EN when i was 19..."

I have not been given an official diagnosis of EN, after multiple labs including chest X-ray, ct scan, ultrasounds and all blood work. My doctor pretty much said “no more tests needed”. I continue to have flare ups of painful nodules on arms, legs, belly and upper back. Your connection to possible supplements or vitamins caught my attention. These nodules began for me exactly 3 years ago at the beginning of the Covid pandemic, which is when I began using vitamin d, c and zinc with magnesium. I also began using probiotics. I have also considered the correlation. Also considered that I had a severe case of influenza B one year prior and was prescribed multiple antibiotics for secondary infections. Some antibiotics caused such severe stomach pains I had to stop using them. Is it possible it was the antibiotics? I wish I could figure out what triggered this, I am tired of continually dreading a flare up!