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Thrush! Forever…

Asthma & Allergy | Last Active: 5 days ago | Replies (12)

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@lluth412

I am going to Mayo Rochester.

Our issue with prednisone is nothing else has worked so far. They do not know what I have - I am a complete mystery. None of my tests, CT scans etc fit any definitive diagnosis. It has confounded my pulmonologist here and right now we are just trying different things to tamp down the mucus from building in my lungs. I am looking forward to a new opinion from the Mayo team. And trying new things that are not as icky as prednisone.

If you have any questions/topics that you think really helped at your first appt I would love to hear them!

Lisa

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Replies to "I am going to Mayo Rochester. Our issue with prednisone is nothing else has worked so..."

@lluth412
You are going to one of the most outstanding clinics.

What I did was do research on WEB MD, Mayo Clinic, Cleveland Clinic and looked up bronchial mucus, and your symptoms, etc. I got a lot of information that way.

Write down your questions AND tell them that you have written down questions. That way they know you have them and will devote the time to listening to them.

Questions: It is very important to asked questions to what you are experiencing and anything you have found that aggravates (triggers) it or helps improve it. Let them know your treatments and what worked and did not work. Also let them know you have been on steroids quite a bit.

Asked your pulmonologist about allergies. The are known triggers. You can have allergies inside your home and outside. If you do not address allergies they can remain a trigger to your symptoms. I use a lot of air purifirers and nasal rinses.

Are your triggers psychological. This means stress, anxiety, etc. which all cause inflammation and can be a trigger. I have a known trigger when I do Sprint Triathlons during the swim phase. I tighten up, fear the swim, and then coughing and breathing issues start. Other times can smell something and a dozen sneezes and coughing up phelm. Then eat something and same. So baiscally I am a mess!

Asked about pulmanary fuction tests. It can rule out know triggers but problem with that it is known triggers and still might not find yours. I had this test and quite thorough.

The advair has helped far more than Atrovent, Alberotrol. But I still have flare ups and try to narrow down what triggered it. I like doing the saline rinses. I think my triggers are psycological, allergies, and past infections of the bronchial tubes.