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In 2008 I took Fosamax for about 3 months. No GI issues but one day I could hardly put weight on my right leg. I had pain from the hip on down. I stopped taking the med and my chart was flagged to not have it again. Over all these years, my numbers didn't change that much-not good but not worse. Fast forward to 2023 and a worsening in my spine alarmed me. In January of this year I agreed to try Reclast after speaking with friends and family who had no issues. The infusion was fine then about 10 hours later I had extreme pain in my ribs, side and upper back, dizziness and fever. It subsided over the course of the next day and after several days I felt fine. About 2 months later, I began having a lot of musculoskeletal type pains in my leg, both knees and hand. It lasted about 3 months with varying degrees of discomfort then abated for about a month only to begin again recently. My Dr. said that about 40% of people have similar side effects. It has affected me in a way that I could not be as active as before-walking, hiking, even gardening sometimes is difficult. I'm not sure the trade off is worth it. I won't know until my next scan but am leaning toward not repeating this medication come January. Everyone is different but I wish I had known this before taking it as it affects my quality of life.
Replies to "In 2008 I took Fosamax for about 3 months. No GI issues but one day I..."
Thank you for your detailed reaction to Fosamax and the Reclast infusion. I am so sorry you had the reactions to both! It sounds like when you were taking the Fosamax you may have had what they describe as “an atypical femur fracture” but maybe not if you recovered quickly.
Your reaction to the Reclast is what really frightens me about the infusion. My Dr. said 3 or 4 days with flu like symptoms but no one wants to discuss lingering reactions to the drug that could last for months like you or come and go. I am fully aware that one persons experience may not be the same as another, however, my Dr. didn’t relay any lingering side effects, she kinda brushed it off and she certainly didn’t talk percentages(40% is a lot in my opinion).
I have arthritis in some joints and have had a knee and hip replacement so I am truly nervous about how I will tolerate the effects of the infusion.
I do feel like you. Our quality of life is important. I try to stay active as much as possible and most days have no ongoing pain to deal with except the arthritis, which I can deal with. In the meantime, I am still in limbo regarding what to do. I appreciate your reply.
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Hi - I had my first (and last) Reclast infusion in March of this year, and my life has completely changed. I was very sick for 5 days after the infusion, and have been left with chronic pain in both hands and feet, and 1 -2 times each month an episode of all over body pain that leaves me in bed all day. I was very active prior (yoga, walking, weights, even hip-hop dancing classes), and now I cannot walk more than a block due to the foot pain and cannot work as I cannot be on a computer more than 10 minutes at a time. No doctor seems to know what has happened or how to mitigate it.