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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)

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@hopeful33250

Hello @amapola1987 and welcome to Mayo Connect. It sounds as if you have been dealing with extramammary Paget's for some time now and I can understand that you are looking for some other treatment options.

You do not say where you reside, so I don't know what country (or countries) might be near you. However, please know that Mayo Clinic does see international patients. Here is a link to appointment information, http://mayocl.in/1mtmR63.

Here is some information from Cleveland Clinic in the U.S. about this disorder and what treatments are offered at Cleveland Clinic,
https://my.clevelandclinic.org/health/diseases/24266-extramammary-pagets-disease
From reading the article from Cleveland Clinic, I see that this can be primary or secondary Paget's Disease. Do you know if yours is primary or secondary (from another type of cancer)?

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Replies to "Hello @amapola1987 and welcome to Mayo Connect. It sounds as if you have been dealing with..."

Thank you for your reply.
I am in Iran. The medical services here are more than in the entire region, but I can travel for medical treatment and go to another country that has more expertise in Paget disease. I want to prevent the disease from returning as soon as possible.