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Post-COVID Recovery & COVID-19 | Last Active: Sep 24 10:02am | Replies (4)
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Thank you for sharing. I wasn’t familiar with this condition, and I’m sorry you’re going through this but glad you were able to get a diagnosis. I hope you’re able to find a treatment to help manage symptoms. I looked it up and I see what you mean about there not being a gold standard treatment. I think I had a PT who treated both lymphedema and lipedema, but it seems hard to find those who specialize, like you said. I’m not even sure how someone would even know she treated this conditions in addition to some more common issues PTs treat. Wishing you all the best and hoping you find that’ll help sooner rather than later.
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Thank you, emo. I had no idea what it was either - I of course blamed my inherited fat thighs - but it seems it has nothing to do with it! I was given a list of physical therapists, none of whom are near me and I don't drive. I looked at a few websites for those that had them and just wasn't convinced. I had already spent time getting lymphedema leg and foot wraps when they thought that. They seem to make the main area of lipedema worse. I asked for a list of nutritionists who specifically know lipedema nutrition since that one of the things I read that could help tho' it wasn't clear which of the recommended ones worked if at all. None of my doctors said I should do surgery - another recommended option.
Are we having fun yet?! You'd think long COVID would have become a priority given the number of us with it. It's classified a disability. Shrug.
To us all, hope since there's not much else that can be done.
I appreciate your taking time to read and write more.