I’m glad you were able to get a possible explanation.

What type of connective tissue disorder is it? There are several.

Sadly, it doesn’t surprise me this would happen. It was well known before COVID that a viral infection, even just a cold, could trigger an autoimmune condition. That’s what my doctors suspect happened to me because I was otherwise healthy until a few weeks after I had a very bad illness and then unexplained symptoms developed and progressed and years later I got diagnoses, only for symptoms to return and get worse after a covid infection.

I feel conflicted that on the one hand there are a whole lot of other people who have joined our ranks of the chronically ill and are just as up in arms and frustrated at the slow pace of accessing care of at all, as we were, and now there are more people who understand, but I’m sorry it had to be this way for more people to finally be aware of the challenges facing people with these complex and systemic conditions.

It bothers me when people draw a false parallel of covid to the flu. The flu doesn’t kill or disable as many people as COVID is continuing to do, nor does it appear to cause as many post-viral conditions, yet we’re literally still arguing over the merits of vaccines. It’s a role of the dice.

I couldn’t have protected myself from the ordinary virus that triggered my condition, but we had the power to do it and not enough people cared. It’s sad.

I’m glad you may be on your way to more answers and hope you’ll get relief soon.