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Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)
Autoimmune Diseases | Last Active: Feb 5 3:57pm | Replies (97)Comment receiving replies
I've had Chronic Erythema Nodosum for 5 years. I spent a year in bed and no one could explain what was going on. I went to the best Dr's in New York, many of whom saw my welts but still thought most of it was psychosomatic. It's crazy that it took going to a physical therapist to figure it out, he casually mentioned that going off gluten would to decrease my inflammation. I've been off gluten ever since and now I'm a fully functioning human. My legs still hurt when I walk, and I still sleep more than most, but I can live my life. I highly recommend removing it from your diet to see if it helps as I wish someone had told me sooner!
Replies to "I've had Chronic Erythema Nodosum for 5 years. I spent a year in bed and no..."
@kanaazpereira I took prednisone for the welts, advil for the pain, and adderall or vyvance to stay awake. The gluten for me was the only way to really get everything under control.
@kanaazpereira - if you're into home remedies, I used to make a shot every morning of Tumeric, fresh juiced ginger, E3 live, Flax seed oil, lemon juice, and cayenne pepper.
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Hello @jillianm,
Welcome to Connect; thank you for adding your story to the EN journeys shared by @kgjd97 @kety @freemary @blossom2016 @beff2468 @lshell @mmontgomery008 @stacidaye @esfourplus @lisafl and other members in this group.
I wonder if they have experienced similar benefits?
@jillianm, may I ask, how did you manage your symptoms before learning about gluten? I'm really glad to know that you found some form of relief.