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DiscussionAnyone else on Enhertu? What's your experience? How long?
Gynecologic Cancers | Last Active: Sep 30 10:22am | Replies (23)Comment receiving replies
Replies to "@earnoldnpr, good question about Enhertu and wondering what might be next or if you'll be taking..."
Yes, Enhertu has been working for sure. Weirdly, side effects seem to be less each cycle and are pretty tolerable ( nausea and mostly fatigue days 6-12 and hair loss of course) I know there’s not much evidence out there yet as this is a new treatment for this typecancer but I wonder if after a certain period of time with NED anyone has successfully stopped infusions. My oncologist says I need to be on it “ until it stops working or it is causing other problems.”
i have no experience with enhertu...my pre chemo included zofran and dexamethasone and then dexamethasone (for 3 days), zofran and compazine after.. taxol/carboplatin was my chemo...
I had a good result with Enhertu. My tumors got smaller and I believe one went away. My doctor was going to keep me on for 6 months but I elected for another 3 months, so 9 months total. What I liked about it was that it was predictable. I was able to play pickleball by about day 12, took walks everyday, though I was tired before about day 10 or so. After my last infusion I thought maybe I had a cold, but it ended up being ground glass in my lungs. I was planning on stopping for a bit of a break so needless to say, I did. I am now on a, "chemo holiday". The main thing I did not like about Enhertu was that I had to have an infusion every three weeks and I live far from Mayo clinic so that has been a challenge. My insurance just decided to approve Everolimus, which comes in pill form. I will begin this treatment after my next scans in two weeks. Some people report terrible side effects from Everolimus while others say it isn't so bad. I am hoping Everolimus works for me if not I may go back on Enhertu but at a lower dose. Also, for certain days on Enhertu I felt nauseous but taking Ordansetron worked for me. Hope this helps.
I received Bevacizumab, other names: Avastin, Zirabev, Alymsys, MVASI- with my chemotherapy, I have no experience with Enhertu.