I agree with practically everything you are saying! Your last comment on treatments at Mayo in Rochester I have checked on also. Right now I am working with an upper cervical doctor near me, and hoping that he can help. I do believe if you check further with Mayo in Rochester, and I they do offer options are for longer visits. Check out their top neurologist. That is my next step. Yes what I’m doing now doesn’t work! I wish you the very best and try and stay positive which I know is tough!o