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Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Autoimmune Diseases | Last Active: Jun 13, 2025 | Replies (100)
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Profile picture for Kari Ulrich, Alumna Mentor @kariulrich

Hi everyone! I was diagnosed with hypermobile EDS by Dr. Nazli McDonnell years ago, is anyone here familiar with her research she did while at the NIA/NIH? My son also has characteristics but has not been formally diagnosed. I also have a vascular disease called FMD. This is a abstract of some of her work. http://grantome.com/grant/NIH/ZIA-AG000895-04

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Replies to "Hi everyone! I was diagnosed with hypermobile EDS by Dr. Nazli McDonnell years ago, is anyone..."
LisaA | @lisafl | Dec 29, 2016

I never met or saw Dr.McDonnell, but was directly involved with getting her involved in an emergency situation with a friend with vEDS. I wish she was still at the NIA/NIH, she did such important work!

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