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@hopeful33250

Hello @splendrous,

You were asking about second opinions. Mayo Clinic has three locations with NET specialists at each location (MN, AZ, and FL). Here is a link that will provide you with appointment information for an in-person consultation at any of the three Mayo locations, (http://mayocl.in/1mtmR63).

You were also asking about Dr. Eric Liu, renowned NET specialist. Here is a link to his office in Colorado, https://netrf.org/specialist/dr-eric-liu-md/. As it was mentioned, Dr Liu offers virtual as well as in-person consults.

Here is a list of NET specialists throughout the U.S. listed by state: https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

As NETs is a rare type of cancer, getting more than one opinion is important and other opinions are best from a NET specialist. General oncologists do not usually have the specialized NET training that these doctors have.

I look forward to hearing from you as you proceed with obtaining another opinion. Will you continue to post as you work through this process?

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Replies to "Hello @splendrous, You were asking about second opinions. Mayo Clinic has three locations with NET specialists..."

Will be glad to share. Having more tests this week and next. Then will be doing an econsult with Mayo as my hospital is a part of the Mayo Clinic Care Network.

Thanks for the links. My understanding is that Mayo Jacksonville does not take Medicare Advantage plans, but Rochester does.

I have read on Mayo site that you refrain from eating certain foods and caffein prior to 5-HIAA test? If you have had that test, did you have dietary restrictions prior to the test? Thanks.