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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)

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@anniebannie

Goodness! I can certainly relate. I was diagnosed in April 2018, had a lobectomy removing the quadrant in which the tumor was contained, declined adjuvant chemo, and opted for surveillance. I had good scans every three months for almost two years when CT followed by PET and biopsy showed metastitis to the adrenal gland and brain. I had gamma knife to the brain and started on the targeted treatment, Tagrisso the spring of 2020. I was on 80 mg for several months, but was not tolerating and was tapered to 60mg and then 40mg. The Tagrisso has been successful for me now thus far. I go every three months for CT abdomen/chest/pelvis, brain MRI, bloodwork, and doctor visits; and my reports continue to be “stable” which is a word we love to hear. I thank God for my doctors at Mayo Clinic, for my treatment, and my husband who is with me every step of the way. I will be 76 in January. I am tired much of the time, which I attribute to a combination of cancer, treatment, and age.

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Replies to "Goodness! I can certainly relate. I was diagnosed in April 2018, had a lobectomy removing the..."

Hello. You’ve certainly gone through a lot! I didn’t have any surgeries or radiation. I wouldn’t be here if not for my husband and my team at the Mayo. My husband initially sent my records to the Mayo. I’ve been taking a research med since August 2023 and so far it’s been controlling the cancer.

@anniebannie, You are a beautiful example of someone living life along with having stage 4 lung cancer. I'm glad that Tagrisso has been effective for you for four years. Thank you for sharing your story, and that you have been successful with a reduced dose.
The fatigue from these types of meds is real. Have you found ways to combat the fatigue? I try to take naps, and caffeine helps.