← Return to Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Comment receiving replies

I just found out 2 weeks ago I have this condition. My kidney and GI specialists both said it was arthritis related. After looking it up on the internet everything I have points to erythema nodosum. Mine have turned in to bruise like places. Still sore to touch. Have been on prednisone for years because of polymialgia and RA. Hopefully this is just one episode only. I’m 72 years old and in good health otherwise.

Jump to this post

Replies to "I just found out 2 weeks ago I have this condition. My kidney and GI specialists..."

@freemary, Hello! Thank you for joining and welcome to our community!

I am connecting you with community members @kgjd97 and @kety. Patient support or talking with someone else who is going through or has gone through the same thing as you will help support you through your Chronic Erythema Nodosum journey.

From what I have read this tends to flare up then go away, right? I cant imagine the pain.

Are the “bruise like places” open on the skin? or does it just flare up under the skin?

sending you warm thoughts from the frigid cold in MN!!

The bruise spots are still sore to touch. I’m use to pain, having RA and polymialgia, that causes your muscles to become inflamed. This is the first time for erythema nodosum. I do have a raised rig about 1 1/2″ around my left upper arm, it’s sore to touch but has never changed color. Had it for years. No open sores.

Hi, I am relived for the first time in years. My doctor has put me on Wysolone and Nucoxia. I have just started the medication and am feeling much better. The redness of the nodules has gone and the nodules are fast disappearing, no pain. Maybe due to pain killer Nucoxia. I am to continue Wysoline which I understand is a steroid for five days, three times a day, then twice a day for 5 days and then once a day for 5 days. I just hope this does not recur when the medication is stopped. Will keep you informed.

i STOPPED Nucoxia, though I still have four days of Wysolone to go. Once a day. The nodules have started again and painful. Only painkillers seem to work. God knows if there is any treatment for this. I am planning on seeing a Homoeopath Doctor.