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Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver
Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)Comment receiving replies
Thank you for your reply. Where is Dr Lui located?
So you received three opinions and recommendations on treatment. Would you recommend getting three opinions? I have just had my biopsy. I do not know the grade, stage or source. I understand that sometimes they can not locate the origin of a metastatic liver carcinoma. Since you had virtual and in person consultations, I am interested in your view of the two. I was wondering if it was better in person or if seeing images and virtual consult was equal value. Thank you. jlrogers200@yahoo.com
Replies to "Thank you for your reply. Where is Dr Lui located? So you received three opinions and..."
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Hello @splendrous,
You were asking about second opinions. Mayo Clinic has three locations with NET specialists at each location (MN, AZ, and FL). Here is a link that will provide you with appointment information for an in-person consultation at any of the three Mayo locations, (http://mayocl.in/1mtmR63).
You were also asking about Dr. Eric Liu, renowned NET specialist. Here is a link to his office in Colorado, https://netrf.org/specialist/dr-eric-liu-md/. As it was mentioned, Dr Liu offers virtual as well as in-person consults.
Here is a list of NET specialists throughout the U.S. listed by state: https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
As NETs is a rare type of cancer, getting more than one opinion is important and other opinions are best from a NET specialist. General oncologists do not usually have the specialized NET training that these doctors have.
I look forward to hearing from you as you proceed with obtaining another opinion. Will you continue to post as you work through this process?