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Weaning off of prednisone & pain management
Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:23am | Replies (156)Comment receiving replies
Many Thanks, for the light at the end of our tunnel. With me reading, studying and self prescribing, due to the Rheumatology expert (PMA) lacking, I am figuring my own weaning procedure, timing of 1-2 weeks and amount. As mentioned I have gone from the 30mg initial dose, to 25-20-25, now 12.5 started last Saturday anxious to get to 10mg then less. The absolute worst is a feeling of non productive worthless-ness; especially when I have so many projects left to complete. I can barely accomplish 1-2 projects per day, mostly at the late part of day after Prednisone wears down some. My old 78 GM truck is near ready for primer & paint, winter garden to go in, seedlings started and near ready inside, painting of 1 vanity and cabinet, trial run for final tune of 3 new rifles built and much more---All as time is wasted on the "wait for a Doctor Game". I'm glad you are making progress and wish the same for all others.
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In 5 years, I was not able to do hardly anything, so I understand the frustration. I've accomplished more in the past 8 days than I have in the last 5 years. As far as the doctors go, I know the game very well. But I believe I also played my cards right. Because I was left for so many years without a diagnosis, I became desperate to find answers. I would make an appointments with multiple Specialists locally, and then made appointments with Specialists at University of Penn Medicine, in Philly. After a short time I would at least get to see a doctor almost every other week. I needed answer. I truly felt like I was dying and I'm not a "dramatic" type of person. Eventually my Rheumatologist collaborated with UPenn on my health care which was great, because treatment happened quickly. Here I am 13 months later and hopefully will be off of Prednisone this week. Also, you may want to ask your doctor what will happen once your weaned off of the Prednisone. If you have no pain, will you need to be put on another med OR will finishing up the Prednisone be the end of your treatment? My first Rheumatologist had me preapproved to go on Kevzara injections, but my new Rheumatologist told me I don't need to take anything. Best wishes and keep us posted on your progress. We are all rooting for you.