Mayo Scottsdale Gastro experience?

Posted by clemlaa @clemlaa, Sep 22, 2016

Okay I'm going next to Mayo in Scottsdale to see a motility specialist for Gastroparesis and SIBO. Anyone been treated here or have advice?

I am pumped.

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@clemlaa

I feel so relived. I've been having health problems relating to digestion (possible gastroparesis and SIBO) and have been feeling so bad. Had to take medical leave from work. Desperate to get answers and find doctor to help me (local GI had very limited expertise and tried to get me on heavy meds even though gastroparesis was hit or miss and didn't seem to be permanent). Scared and desperate for help I called Mayo Clinic and was able to get in with GI motility specialist. Started with him. Very good. Within one visit he ordered me at least 10 tests and had me seeing neurologist and other specialists and had cardiologist check out my heart. Turns out my case is very complex and I could have POTS, EDS type 3, or a few other syndromes. Good news is they are getting to the bottom of it. I've spent one week here and am feeling like a lot was accomplished and return week of October 11 for two pivotal tests which should give me the answers I need. I am so grateful I came here and the first in my family to go to Mayo. Wow we are so impressed and relived. Scottsdale is where I am being treated and GI & Neurology dpt is kicks$$, top notch. I've heard Rochester is the main hub of Mayo with good doctors too. God bless the Mayo. I hope there is a treatment plan to get me well. Whatever they tell me to do I am doing it all the way. I trust these experts.

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Hi @mrsdeece,
The book is Amyloidosis: Diagnosis and Treatment; (Editors: Gertz, Morie A., Rajkumar, S. Vincent), and seems to be the most up-to-date resource on Amyloidosis.
If you do read it, please let us know your thoughts.
Thanks much.

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