Hot flushes and the vagus nerve
Has anyone had any luck using vagal maneuvers to manage hot flushes while on ADT?
https://en.wikipedia.org/wiki/Vagal_maneuver
The huge vagus nerve is involved when people go into cold sweats and then faint (e.g. with needles) — called a "vasovagal syncope" — so I'm curious whether it has a role in triggering our hot flushes as well. There's some very early research into its role in triggering hot flushes for peri-menopausal women (those hot flushes aren't well understood yet either).
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Having had hot flashes for the last seven years I’ve been pretty immersed in treatment for it.
Never heard of a vagus nerve solution.
Have heard and seen many different solutions, most involving hormones. One person who has them frequently, said that eating tofu every day solved his problem
I often wonder why I haven't experienced heavy hot flashes from ADT drugs; first Firmagon now Orgovyx. Is it the phytoestrogens in soy? I consume a lot of organic soy milk and also eat tofu and tempeh.
Possibly, or maybe you're just lucky that your body doesn't react that way.
I've been on ADT (Firmagon, then Orgovyx) and ARSI (Erleada) since 2021. My side-effects are sometimes annoying but usually quite tolerable, and they seem to diminish a little every year. I used to get several hot flushes a day, for example, and now sometimes I go through several days without one.
Other people report the side-effects of ADT to be unbearable, even if they have to be on it for only a few months instead of "forever". We're all made a little differently (I react *very* badly to steriods and opioids, for example, so I avoid them whenever medically safe to do so).
When I was getting chemo, I would get hot flashes, at times it was funny. Now I get the flushes, at times makes me shake my head. Seems like for no reason sweat starts running down my face. Now, if I could only get the fatigue to be tolerable, I'd be good to go. LOL Best to all.
When I was getting hot flashes, like that, I noticed that fatigue would hit me just before the hot flash. Didn’t get noticeable fatigue otherwise. After a year, my oncologist had me taking depo-provera every 3 months. That pretty much stopped the hot flashes and the fatigue. I know another person that said eating tofu daily stopped the hot flashes. There are also other hormones you can take that will stop the flashes.
I also wear an embrlabs.com wave 2 device to control the hot flashes.
What do you mean by "fatigue"? We men on ADT have some level of fatigue. So, when you say fatigue, do you mean, "I have to lay down fatigue", or "I can't get out of bed fatigue" or "I just feel more tired - but I keep going fatigue". I have the third type. I get hot flashes, some are worse than others but I keep going. I never get over the anxiety that hits me at first. It lasts for a second, announcing I hot flash is coming, then I feel the burn moving up from my stomach all the way to my head. Lastly, sweat pours out of my head. By the end of the day when I take a shower, I feel like a slimy fish from all the sweating and hot flashes.
For some reason, I never really felt much fatigue from taking Lupron or Zytiga. When I was initially on Lupron for a year, just before a hot flash hit, I would feel this tiredness and then the hot flash hit, this only occurred when they were really strong. The fatigue wouldn’t last long, but it was quite noticeable. I would just feel tired not enough to lay down, just enough to sap my energy for a few minutes. Didn’t want to stand up right away.
It completely stopped when I started taking depo-provera.
I have the fatigue type that I''m mostly always worn out. I still work 40 hours on my feet. I very seldom take naps. It's been like this since I started treatment 18 months ago. It's very important for me to keep my head in a good place, the body is the same every day. Best to all.