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@tls4

Hi Cyn @cyninaustria
Your doctor is following an unusual protocol in the way he is using prednisone. I think it’s most common for doctors to start their patients on around 20 mg of prednisone for a couple of weeks to a month, and reduce from there. If symptoms respond to steroids right away, (often within hours) then that is evidence of a correct diagnosis. I was started on 10 mg of prednisone and my symptoms resolved within about eight hours. I felt pretty much back to normal. Based on most other people’s experiences, it seems like your doctor started you at an excessively high dose, but then reduced way too fast. If a higher dose (20, 15?) resolved your symptoms, you should ask to go back up to that dose and then reduce much more slowly. If you never did experience complete or nearly complete relief of your symptoms (it feels like magic for most of us; it’s that dramatic!) then you may have something else going on, as John mentioned.

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Replies to "Hi Cyn @cyninaustria Your doctor is following an unusual protocol in the way he is using..."

yes, I was started on 20 for 2 weeks, 15 for 2 weeks, 10 for 4 weeks and then 1mg reduction every 4 weeks. I had relief within hours in the beginning. Most reductions caused a little creakiness for a couple of days and then at 4-5 mg had more difficulty and had to play around with the tapering