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Weaning off of prednisone & pain management

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25 10:23am | Replies (156)

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@joan7

I had extreme bouts of pain when weaning off of Prednisone starting at 10 to 7.5 mg. That lasted 3 days. Took 2 Advil and the pain went away within the hour. Then again another waive of pain from 7.5 mg to 5 mg, this time I stopped it after 2 days with one dose of Advil. So at 5 mg they started to wean me by 1 mg. 5 to 4 I had pain a little longer. 4 to 3 I had pain a little longer. Then they switch my regimen from 3 to 2 alternating days, and that went a lot better. Then 2, then 1 mg, and as of next week I hope to be off Prednisone. So the moral of this story is. If you are having pain during your weaning process, it could be because of the Prednisone and not the PMR. The same thing with feeling better when your coming down of Prednisone. It does what it needs to when you need it, but it can cause side affects as your coming down off of it.

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Replies to "I had extreme bouts of pain when weaning off of Prednisone starting at 10 to 7.5..."

Many Thanks, for the light at the end of our tunnel. With me reading, studying and self prescribing, due to the Rheumatology expert (PMA) lacking, I am figuring my own weaning procedure, timing of 1-2 weeks and amount. As mentioned I have gone from the 30mg initial dose, to 25-20-25, now 12.5 started last Saturday anxious to get to 10mg then less. The absolute worst is a feeling of non productive worthless-ness; especially when I have so many projects left to complete. I can barely accomplish 1-2 projects per day, mostly at the late part of day after Prednisone wears down some. My old 78 GM truck is near ready for primer & paint, winter garden to go in, seedlings started and near ready inside, painting of 1 vanity and cabinet, trial run for final tune of 3 new rifles built and much more---All as time is wasted on the "wait for a Doctor Game". I'm glad you are making progress and wish the same for all others.

Please Be Careful for use of Advil or any/all NSAIDs. Check your sources and notice the severe side effects of Gut Bleeding and Erosions when combining NSAIDs with Prednisone. Stick to Acetaminophen, not nearly as good, but won't kill your gut---just your liver if you exceed doses. Turmeric & Ginger helps with the inflammations . Everything in moderation.