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Severe Tortuous & Redundant Colon

Digestive Health | Last Active: 1 day ago | Replies (95)

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@standinginfaith

Ohhh you touched me...you really did!! Thank you soo much!! You are a blessing!! I am currently debating with my GI..on the surgery is that what it's called .. see I don't know much.. but am soo desperate!! You are also hilarious.."dont mess with my meds"..I love that!! Well I was doing fine on Linzess the the GI put the Scopolamine patch on my neck.. OH NO!!! Gut stop!! ER!! I should have left well enough alone.. nausea is better that plugged up..gee whiz.. so now he had me try IBSrela..$340 copay monthly..(I and I have ChampVA.. Husband was a 100% DAV Vietnam vet) well 3-4 days of those just made me sicker.. so I'm on Trulance .. which doesn't work but doesn't make me sick..and 3 biscadyls every so many days.. I'm really careful what I eat..do 2 Vanilla plant based ensures a day.. and have gone from 98 pounds to 144 (nothing fits now either.. too chubby..) And .. my boyfriend (haha!!) It is wierd..isn't it..lol!! I stopped the shrink from giving me 3 different antidepressants and sometimes four.. he would have been a "friend" to all those "script abusers".. I switched shrinks.. and am only on one at night.. no one messes with my meds either...so I'm taking the Trulance to no avail and bombing myself with biscadyls every so often and waiting for my appointment with my GI first of October.. we live so rural.. I may have to go to a hospital 4 hrs each way.. and my boyfriend doesn't drive in "big towns".. (he's sooo country).. his sister will take me .. I am soo pleased you have a good man and 3 children.. they may not understand.. all about this and it's hard on them..it's hard on my boyfriend..and sometimes we fuss.. but you see.. you have soo much to live for!! And you have brightened my life!!! God wants us well.. I hope you don't mind me saying that.. Jesus died that we might have life and have it abundantly. I want that abundantly (healthy .. satisfied!!) I want you to have that life too!!!I think you're actually quite an amazing person!! Sweet dreams to you!! Nitey nite precious lady!!

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Replies to "Ohhh you touched me...you really did!! Thank you soo much!! You are a blessing!! I am..."

standinginfaith,
Well, does this mean we are friends, cuz we are in such friggen much pain and can talk at length about our 💩💩‼️‼️, and somehow still joke about silly stuff as having a "boyfriend " when we are old enough to maybe have kids and maybe have grandkids. Every once in awhile, something or someone (today, that would be YOU), gets me to laugh at myself and my misery and either ROTFLOL🤪or sob myself hysterically 😢 then go take a few Valium to calm myself enough to sit still. I've been so Amitiza, Linzess, now Trulance, none of them performed as promised. I think I may do a trial run, stopping the Trulance for a month and see what happens. I held back extra Linzess, when the money grubbing dr. changed it to Trulance.
Were you given Scopolamine for nausea?? Now that is a first I've heard of that. I find that Phenergan has worked well for nausea for many years. Also I find that Dramamine (motion sickness, OTC) works well too, with an added bonus effect of drowsiness, to try and sleep through the roughest nausea. Migraines add to my nausea too. I don't remember if you said..have you tried using higher doses of miralax? And now I have found that the Metamucil gummies work much better for me than the powder form. I take 3-4 capfuls of miralax and 5 gummies almost every day. They work well together, for me, and I do know that I take high doses. But it beats going to the ER or performing the hellish task of digital removal. The industry tells us never to do this...the industry has never had a huge hard mass of 💩💩 blocking the output process. OMG, I have had to go it 3 times three years ago, I will never allow this to happen again.
What is the IBSrela-$340 copay...a new medication or a new insurance plan?
Watch for another post from me.
ShelleyW