← Return to Desperate: Is there any hope for neuropathy?

Discussion

Desperate: Is there any hope for neuropathy?

Neuropathy | Last Active: Oct 23 6:49pm | Replies (118)

Comment receiving replies
@findtheanswersdn

Hi I'm sorry your going thru this too. it's a dam curse. I am 69 yr female just diagnosed with some kind neuropathy, not known, test after test, numb feet for year, why didn't I go Dr sooner. they felt heavy not really pins and needles numb, then got bad muscle or nerve pain dont
know. which top buttocks down back of thighs etc especially after inactivity or sleeping 2 to 3 hours. intolerable. All med Dr want to do is give u another pill that gives u 15 more GD side effects. I already have high blood pressure, chronic lung problems didn't ever smoke, high cholesterol, and prediabetes, advanced degenerative arthritis and disc disease back and a spondylolisthesis curvature of 22 percent lower spine. I been doing everything I can to not go on a stupid pill from big pharma. they don't want to cure anything is the US because then we. ant stay sick and make big pharma rich. and all the other side effects from their dam pills, ridiculous. I to trying to get relief from Mayo clinic in Rochester. couldn't get a appointment for three months. two left. end Nov. been trying to work to getting FDA approval on a prescription cream supposed to have good results in phase 11 trials but FDA DOES NOT WANT A CURE EITHER. CUZ THERE IS BED WITH BIG PHARMA. THIS CREAM BEEN CLAIMED TO REGROW AND REGENERATE YOUR NERVES BUT ONLY A SMALL STUDY IS GOING ON CUZ LIMITED PEOPLE allowed in. bullshit politics everywhere. I been trying Neuralace treatments in Waterloo ia at ivo Beckovic MD neurologist office. some slight relief but don't know if it's long lasting in the numbers of feet? cost not covered by insurance or Medicare as always is the case so we are left with just a dam pill with more side effects. that's not right.edicare needs to cover these other treatments proven in trials to help since no one Wants to find a cure but they don't cover it. it's 200 a treatment. then it's ongoing for rest of your life probably. will have no more money left when spent my life savings. trying oral supplements don't have much faith. helps some people but not others. I'm scared. if big cities would bring these treatments to small rural areas, WE ARE IMPORTANT TO AND DESERVE TO LIVE OUT OUR RETIREMENT NOT SADDLED WITH THIS SHIT AND NO EFFECTIVE LONG TERM TREATMENTS OR CURE. BIG PHARMA TURNED DOWN WINSANTOR TO FUND A CREAM THAT COULD HELPED US. NOW WILL BE 4 or 5 years before they get it approved. it was made with a drug Pirenzeprine used to help bladder incontinence. there is an expensive treatment called Neurogenx that is higher electrical than tens and The Rebuilder with longer lasting five year studies but closed to NW Iowa is Minneapolis. six week treatment, two times week for 30 minutes in office 90 percent success rate but it's supposed to be somewhat covered by Medicare probably maybe only the evaluation and X-rays. it's 600 dollars for one treatment a week and 1200 for two treatments a week for 6 weeks and the 3,6 Nd 9 month followup with Dr. don't know if there is maintenance scheduled. only for those lucky people in big cities. I can't afford a motel room for six weeks and this stuff to pay too. so we all suffer. just some I fo it may help some of you lucky enough to be in big city where these are.

Jump to this post


Replies to "Hi I'm sorry your going thru this too. it's a dam curse. I am 69 yr..."

Complementary and Alternative Treatments
The Foundation for Peripheral Neuropathy (FPN for alternative treatments

I agree with practically everything you are saying! Your last comment on treatments at Mayo in Rochester I have checked on also. Right now I am working with an upper cervical doctor near me, and hoping that he can help. I do believe if you check further with Mayo in Rochester, and I they do offer options are for longer visits. Check out their top neurologist. That is my next step. Yes what I’m doing now doesn’t work! I wish you the very best and try and stay positive which I know is tough!o