Urgent help.. Sigmoid Volvolus, disabled adult daughter (autism)

@minajo I have to commend you for all the work you are doing for your daughter. Though, work is really the wrong word. Has your daughter always lived at home with you? As someone who worked in a hospital (I was a nurse), I really think a care management meeting would be best for your daughter. A care-management team would include: you, 1 or two nurses, the discharge planners, social workers, hospital chaplain (if you wish), and maybe the doctor. These meetings were always very successful for the family. You will have a definite say in the discussions. What is 1 solution that you would like to come out of this meeting?

pml, your reply was very sensitive and kind. Laugh for the day... I do talk to God usually several times a day... but... I ususally begging him to make it all stop. Then there are days when I am blaming him for the 2 recreational accidents, ocean and snow literally killed the real me... I tell him "if you didn't want me to continue being an active, kind person enjoying helping others, why didn't you just let me die, Mother Nature is who yanked my life away and left me in chronic suffering and you/he is Mother Nature. 😱🙏😡 ShelleyW

@minajo
I have read through your posts, and I admire all of the thought and concern that you have put into this decision. It certainly is not easy!

You have sought the help and advice of professionals and are making best choice with what you know about your daughter and her health needs.

Will you continue to post and let us know how she is doing?

UPDATE ON NONVERBAL DAUGHTER WITH V
We are at day 10 of hospitalization
Daughter progressed to full fiber diet last night
No resection done after decompression and after8 people holding her for abdominal xray(autism,scared) showed colon empty of
stool
But with colace, she has not had bm, any one know about how long it takes for normal stool to start? She is sleeping in chair, can't tolerate bed
She's walking, drinking lots of water, she did have 2 extremely large formed bms monday nite but nothing since
Can this post be sent to all who replied to me?
Everyone has been so supportive but i can't reply to all, im a 76 yr old tired mom 😔

UPDATE ON NONVERBAL DAUGHTER WITH V
We are at day 10 of hospitalization
Daughter progressed to full fiber diet last night
No resection done after decompression and after8 people holding her for abdominal xray(autism,scared) showed colon empty of
stool
But with colace, she has not had bm, any one know about how long it takes for normal stool to start? She is sleeping in chair, can't tolerate bed
She's walking, drinking lots of water, she did have 2 extremely large formed bms monday nite but nothing since
Can this post be sent to all who replied to me?
Everyone has been so supportive but i can't reply to all, im a 76 yr old tired mom 😔

To my wonderful supporters here
My nonverbal autistic, epileptic sweet 48 yr old who underwent procedure for sigmoid volvulus and decompression Aug 28 , discharged sept 5 after good xray showing no twisted colon, transverse empty of stool, is once again doing some vomiting, tho stools are large, formed mostly, with one 100 mg Colace, fiber foods but is still very unsteady for walking..
She started having dry heaves yesterday after refusing lunch, then couldn't keep broth, applesauce down.. home health RN checked her, no distention, and did okay with severa crackers, jello
She was so traumatized by 10 days in hospital she won't lie in bed , maybe thinks another IV going in, monster xray machine on top of her??
Is not herself at all, she has 2:1 ratio in her carehome of 15 years but now if readmitted to hospital) if vomiting returns) she'll be so combative, AUTISM 🫤, she'll need sedation
But HUGE decision, i opted to hold off resection knowing she might have colostomy, need nursing home, etc and surgeon said another decompression could be done but its only 2 weeks! Could her colon have twisted again so soon? Even without ( prayers here) colostomy, which she would pull off, took 3 ivs out, rectal tube) she'll still need long term placement new, no more day program she lives
I can't have her in pain, what to do??
Any and all input sooo appreciated!
Lisa's mom

To my wonderful supporters here
My nonverbal autistic, epileptic sweet 48 yr old who underwent procedure for sigmoid volvulus and decompression Aug 28 , discharged sept 5 after good xray showing no twisted colon, transverse empty of stool, is once again doing some vomiting, tho stools are large, formed mostly, with one 100 mg Colace, fiber foods but is still very unsteady for walking..
She started having dry heaves yesterday after refusing lunch, then couldn't keep broth, applesauce down.. home health RN checked her, no distention, and did okay with severa crackers, jello
She was so traumatized by 10 days in hospital she won't lie in bed , maybe thinks another IV going in, monster xray machine on top of her??
Is not herself at all, she has 2:1 ratio in her carehome of 15 years but now if readmitted to hospital) if vomiting returns) she'll be so combative, AUTISM 🫤, she'll need sedation
But HUGE decision, i opted to hold off resection knowing she might have colostomy, need nursing home, etc and surgeon said another decompression could be done but its only 2 weeks! Could her colon have twisted again so soon? Even without ( prayers here) colostomy, which she would pull off, took 3 ivs out, rectal tube) she'll still need long term placement new, no more day program she lives
I can't have her in pain, what to do??
Any and all input sooo appreciated!
Lisa's mom

To my wonderful supporters here
My nonverbal autistic, epileptic sweet 48 yr old who underwent procedure for sigmoid volvulus and decompression Aug 28 , discharged sept 5 after good xray showing no twisted colon, transverse empty of stool, is once again doing some vomiting, tho stools are large, formed mostly, with one 100 mg Colace, fiber foods but is still very unsteady for walking..
She started having dry heaves yesterday after refusing lunch, then couldn't keep broth, applesauce down.. home health RN checked her, no distention, and did okay with severa crackers, jello
She was so traumatized by 10 days in hospital she won't lie in bed , maybe thinks another IV going in, monster xray machine on top of her??
Is not herself at all, she has 2:1 ratio in her carehome of 15 years but now if readmitted to hospital) if vomiting returns) she'll be so combative, AUTISM 🫤, she'll need sedation
But HUGE decision, i opted to hold off resection knowing she might have colostomy, need nursing home, etc and surgeon said another decompression could be done but its only 2 weeks! Could her colon have twisted again so soon? Even without ( prayers here) colostomy, which she would pull off, took 3 ivs out, rectal tube) she'll still need long term placement new, no more day program she lives
I can't have her in pain, what to do??
Any and all input sooo appreciated!
Lisa's mom

Oh thank you so much for those kind, supportive words.. wish i could give you a hug!
I'm not quite sure i made correct decision to put off the inevitable, majority of drs have said sigmoid volvulus can/ will reoccur.. i know if the vomiting returns, she refuses to eat, distention again, its ER time.. then decompression again or surgery, of course hoping for no colostomy but🥺even then major abdominal surgery.. weeks in a skilled nursing , then?
Knowing Lisa's aversion to needles, bandaids even, beds😳.. lots of drugs to add to her already overloaded body..
So I've done research, looking at all scenarios, hmm, none seem remotely good.. just pray this one decompression is a miracle fix?? Im going with that..
Thank you to all who give me support, advice..