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Evenity - My Email to FDA

Osteoporosis & Bone Health | Last Active: Sep 23 4:11pm | Replies (73)

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@normahorn

I do not understand the objection to wanting doctors to display honesty and integrity from the very beginning. Don't start a patient on a medication only later to tell them that another and another is, or may be, needed. Say up front that the goal is to treat to get a patient out of osteoporosis, if possible, and that may require multiple treatments. Don't hide that and expect me to have any trust in that doctor. Let the patient make an informed decision and not be deceived. And don't then fallback on supposed "protocol" and overdose. I want the minimum expensive, toxic chemicals put in my body that will accomplish the goal.

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Replies to "I do not understand the objection to wanting doctors to display honesty and integrity from the..."

@normahorn I don't think that starting a medication means a lifetime of drugs. Though osteoporosis, if severe enough, may mean long term treatment. That's all.

Of course doctors should be upfront about the need to do follow-up to "lock in" gains but it is hard to predict, at the start of treatment, what will be needed in the future. To be frank, I don't think it is an honesty issue. I don't think they know. Noone seems to know how to treat this over the decades some of us may have. They actually say "We don't know."

The sequence @lindarent describes has one problem : Forteo after Prolia. Her doctor's problem seems to be something besides honesty and integrity. The sources I have (Leder and McCormick, and my doctor) say that Forteo won't prevent rebound and also won't be effective after Prolia- two things that are actually related.