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Evenity - My Email to FDA

Osteoporosis & Bone Health | Last Active: Sep 23, 2024 | Replies (73)

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@normahorn

I think I understand. When we are initially presented with a treatment, I do not believe that our practioners fully explain that we are starting a lifetime of osteoporosis drugs. I know I had to push to get the scope. Only be joining Connect did I grasp what this entails. Transparency upfront would build trust.

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Replies to "I think I understand. When we are initially presented with a treatment, I do not believe..."

@lindarent may be able to take Reclast 1-3 times and take a long drug holiday. Since her MD wants Forteo (which would not be advised by many, after Prolia) it seems that her bone density is still not good.

Are we committed to a lifetime of drugs because we started one, or because our bones are bad? I think the latter since we can "lock in" gains with a bisphosphonate that lasts a long time in the bones. But interested in what others think.

@normahorm are you suggesting it is better not to start? Or to "treat to target"?

I can see that for sure with mild osteoporosis, drugs might be avoided, and hope doctors are no longer prescribing for osteopenia. For those of us with fractures or severe bone density loss, there isn't much choice. It appears that @lindarent is unfortunately in the latter group but I could be wrong.