I m surprised the MO didn’t order one of those PET scans that can see the cancer at 0.2 or higher. Instead he just started the med. again.

A 20 month vacation after being on it for 10 months is absolutely wonderful. I’ve been on first and second generation ADT for five months now and I’m tired of the way I feel. I miss feeling like I used to before starting it. Stronger, less emotional, more focussed. Part of every day is an absolute struggle.

My MO wants me to be on Orgovyx and Zytiga for another 19 months. I am going to fight for a vacation starting the middle of July 2025. That would put me on ADT for total of 15 months, 12 of which would be post salvage radiation.

May I respectfully ask what stage cancer you were diagnosed with and what your Gleeson score was? I am a stage 4 N1 Gleason 9 patient so the stakes are quite high, but quality of life is worth something too.

Bob

Out of curiosity, did it take all 20 months for your T to rise? In other words, did you get to enjoy several months of normal T and the quality of life it brings before you had to restart the ADT?

Hey star, Maybe I’m picking this thread up late but did you have primary treatment - ie surgery or radiation before this regimen? I would assume you had, but some patients want no part of either one.