Notifying work
Just venting......
When telling work colleagues, were you coy about it, or did you use the C word straight away?
I'm a computer tech, supporting 500 users at a library and an art gallery.
Lovely people & I've been very open about my prostate cancer from day one.
That's partly because another tech had esophageal cancer and kept it to himself until the day he died. Quite a shock for everyone.
So I've been very open with every user I see frequently. They've all been lovely, but most have been told by Management that my 6-week absence from work is for medical reason - to "protect my privacy".
Bugger that. I'm telling everyone who asks.
But I got an email from one user saying: "Hi Pete, I have just heard you aren't going to be around for a while - no details, just enough for me to become concerned about the reason for your absence.
Whatever it is, if it isn't good - every best wish for it to proceed smoothly and result in a positive outcome.
If it is good - Enjoy.
We look forward to your safe return."
Another one said "What is this about your being away 6 months? Everyone has been saying 6 months! I started to panic a little".
Although I tell anyone who asks, to be honest, it's getting harder to explain that I have cancer over & over again as the surgery date draws near.
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
Interesting that you mentioned a cool pack against your inner wrist. Embrlabs.com makes a device called the Wave 2, Technology was invented by MIT. It looks like a watch but hangs on the inside of your wrist and sends cold waves through your arm to stop hot flashes.
I’m including a picture of one on my wrist.
I used to wake up at night with the sheet under me soaking wet from hot flashes This device has an all night mode that sends infrequent cold waves through your body and stopped the hot flashes at night for me.
There’s another button you can use for hot flashes during the day or evening that sends cold waves through your arm and if you hit it as the hot flashes are coming on it can stop them from building.
I’ve used one for three years now. I have two of them and have put one on each wrist when I went to a really hot areas and kept starting them over and over (daytime mode lasts max 10 minutes), and it prevented me from getting hot and sweating. Just another use for these devices. They also have a warming mode if you want to warm up when you’re real cold. I’ve never used that.
Another hot flash solution.
The cool pack idea reminder me of a product I saw "embr labs" watch. People say it works and I would try it if I had a real problem. But purely from an engineering pov I wonder if it could really do what is claimed.
Ignore what I wrote. See @jeffmarc post above
Pretty much what I got - "He's sick & will be away for a while".
I understand the "to protect your privacy" thing, but I don't want my privacy protected.
When its a condition that can be attended to quickly if it's detected early - and most of my colleagues are 40+ men.... tell them. I do.
HR etc mean well. I just ignore it & tell everyone the truth - especially the guys.
Stage 4 recurrent prostate cancer person here with a non-medical thought for your consideration:
You may want to consider switching from Eligard to ORGOVYX. I’ve encountered enough fellow PCa patients that reduced the number and severity of their hot flashes by switching from Eligard to Orgovyx, that I insisted that my doctors order it for me. Overall, my hot flashes are a little more than an annoyance. All of my friends who have been on Eligard had more frequent and severe hot flashes.
Good luck on your journey!
I switched from Firmagon (Degarelix) to Orgovyx (Relugolix) a few months ago. As the shared "-lix" suffix suggests, they are related — both are GnRH receptor antagonists — but just switching from monthly injections to daily pills has made a huge improvement in my quality of life.
I've never taken a GnRH receptor modulator like Eligard/Lupron (Leuprorelin), so I can't compare there, but yes, I'd *never* want to go back to megadosing big monthly injections unless I had no other medical choice. I'm really surprised at how big a difference it makes spreading it out in smaller, daily doses.
The first 4 months I was on Orgovyx I was getting one or two hot flashes a day maximum. After I was on it for five months I started getting more hot flashes. I’m now getting between five and nine hot flashes a day. I use my Embr Wave device at night and that pretty much keeps the hot flashes down while sleeping. I had to start using the fan and my wave device during the day again.
With the wave device if I don’t hit the button right away when I start feeling the hot flash, then it does build some, so the fan helps. Problem is, you can’t always tell when it’s starting to come on, or I am doing something and I can’t hit the button right away.
I pay nothing for Orgovyx. With my insurance if I get a Lupron shot every six months they charge me $400. Crazy!!
Hey Jeff, you’re awesome buddy. Great post. Thanks.
What a coincidence! I just ordered the EMBR device a day or two before I saw your post. I can’t wait to try it. You mentioned you actually use one for each wrist, is that correct? Did you originally just try it with one wrist and then you realized that two would be better? How long did it take you to find the right settings that worked for you?
I’ve been using the Sleep Number Dual Temp mattress pad to help minimize hot flashes that wake me up during the night. It works on any bed whether or not you have a sleep number bed. It has helped quite a bit to minimize the number of hot flashes that wake me up, but like everything else in life, it’s not perfect. https://www.sleepnumber.com/products/dualtemp-layer
I’m hoping that the combination of the Embr Wave and the Dual Temp system help me sleep even better.
Bob
When you get the Embr device set it up so that one button cools down the hot flash for five minutes and the other button does the all night mode for seven or eight hours. I always pick the coldest cooling setting. If you need help setting it up, let me know.
I don’t use two of them for hot flashes. I went to an event where I knew the weather was going to be hot so I wore two of them and put them on constantly to keep me cooled down. I beta tested the device and have the old version and the new version. That’s why I have two. I did at one time test two of them at once to see if they helped more with hot flashes, but didn’t find a significant difference.
For sleeping at night I use a heater that goes under the sheets. It has three zones, bottom, middle and top. For my wife, I turn all three zones on. For myself, I turn on only the foot zone at the lowest temperature. That tends to have some waves of warmth come up from my feet, and my feet, don’t get cold. I have the wave device set for all night mode, and I seldom feel a hot flash. Have to sleep a little cold when you’re getting hot flashes.
I live in San Francisco, so it never gets real cold or real warm. Occasionally I have my heating blanket set to the second warm setting (there are 10) if it’s colder. If it’s over 72 or 73 in the bedroom, I will not turn it on at all.
Excellent info! Thanks! Will keep you posted.