← Return to biopsy for small nerve fiber

Discussion

biopsy for small nerve fiber

Neuropathy | Last Active: Oct 23 7:51am | Replies (44)

Comment receiving replies
@emo

That’s tough. I used to practice 2-3 times a week too, and I miss it. I did gentle vinyasa, but I struggle with it mostly though because of joint pain due to a different condition and it’s hard to find asanas to substitute. I’m trying to start small, with anything I can do to get me focused and breathing. It’s hard when I feel like, “But it’s not the same!” Usually in the end, it still feels good in my body.

The neurologist I had who was helpful; she actually suggested restorative yoga, yoga nidra, or gentle flow. She had done a small study on it I think.

Have you considered PT and OT? They may be able to you get back to doing some things you miss and come up with adaptations to make things more accessible.

I’m looking into Curable too. It was recommended to me by a Mayo PT. My disclaimer about it though is that they very much cheerlead the, “If you can change the way you think of pain, you can change your pain!” approach, which is not false (pain is a message your brain sends out because it perceives a threat based on something going on internally or externally, so even if we can’t control what’s going on internally, we can control other factors that influence pain; it sounds a bit “woo woo,” but it’s true), but sometimes I feel like it’s a little oversimplified. I guess that’s the nature of it being an app and not a human tailoring the message for you.

I learned a pain neuroscience approach from my PTs, but it can be hard to find someone who’s knowledgeable and when I was pointed to Curable, it just made it a really easy to point to it as an example of a pain neuroscience approach because they have a lot of free resources and their pain education information I found particularly helpful…even for explaining concepts to my doctors.

Jump to this post


Replies to "That’s tough. I used to practice 2-3 times a week too, and I miss it. I..."

My PT had me doing neck extensions which worsened my PN. It was below my neck and down to lower-middle back. Now, I have constant burning in my neck even on the Gabapentin. At first, I did not connect the PT to my worsening symptoms, but when he had me increase the repetitions, I knew. Supposedly, I have mild cervical stenosis and degenerative arthritis in my neck. My EMG of the upper extremities said cervical radiculopathy, but then no one trusts his report (A hand surgeon, a PA for neurosurgeon, rheumatologist, and lastly the PA at the pain clinic). It's all extremely frustrating.