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PMR and prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Sep 24 5:09pm | Replies (33)

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@nancy53

So sorry that you have PMR. It's a hard disease to regulate. I imagine even harder with diabetes.

I don't think skipping your doses of Prednisone is a good idea. From what I've read, your adrenal glands produce cortisol and stop functioning with the presence of the drug. Those little white pills are very potent, and not followong the dosing protocol can be very dangerous. Not taking it probably contributes to the pain you are having,

My onset of PMR was last December. I started on 20mg of Prednisone, taken in the morning. I've taoered to 5.5mg by reducing 0.5mg every 2-3 weeks. If I hurt, I go back up 0.5mg and slow my tapering.

Yoga, acupuncture, walking, and swimming have helped my pain. I am active in my home and garden. Some days I don't do much which drives me crazy. Fatigue requires an after lunch rest - sometimes nap.

Probably the most important aid to recovery is your diet. Since December, I have eaten a very "clean" diet. The Arthritis Foundation has great info. Basically, I try not to consume processed food, white flour, sugar, sodas, red meat, and alcohol. I do have a treat every once in a while.

Prior to December, I was a very active 70 year old. Trying to get back to pre PMR levels of activity has been a challenge, I think I need to just relax a bit and enjoy the little things.

My best advice for you is to STUDY and READ all you can about this awful disease. YouTube has some great videos, most from the UK. This link helped me tremendously at first. https://youtu.be/fjk27oGh2aQ

Good luck and enjoy your grandkids!

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Replies to "So sorry that you have PMR. It's a hard disease to regulate. I imagine even harder..."

Your comments have been very helpful. I am 71 and try to stay active. We are planning a trip to Gatlinburg and we like to hike. Planning on taking my walking stick and do short distances. Thank you so much. I am not as confused.