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Support For Those Quitting Prolia

Osteoporosis & Bone Health | Last Active: 18 hours ago | Replies (152)

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@formisc

@rjd,
Yes, it was a big relief! My target for CTX is between 150-280 when not on any osteo med. Then I won't have to be so anxious when I see my dentist!

I included iPTH not for any particular reason but because it is a standard bone-related marker. Seeing it in the recommended range at least indicates that my osteo is not caused by an over-active thyroid gland

I am not sure how iPTH co-relates to CTX (if it does at all) but Michael Lavacot did make some interesting comments on my iPTH reading after my 2nd BTM test. I quote from his earlier post as follows:

"Hi formisc - Yes, the standard range for PTH is 15-65 pg/mL, however, it will go higher and even out of range when your body has a low calcium level. This is the signal to your bone, kidneys, and intestines to gather more calcium into your blood. My last blood test where my calcium dropped to 8.7 (normally around 9.5), my PTH jumped to 70 (normally 45). So I increased my calcium to get it back up. Prolia (or bisphosphonates) can make it tough for your body to get calcium from your bones when it needs it, which is good for bones, but bad for your bodies ability to control calcium without adequate diet calcium." - Thanks, Michael!

I actually never had any side-effects from any of my 3 Prolia shots so I didn't stop because of any such reasons but because I did not like the long-term consequences of being on Prolia.

Your last CTX score should not be a cause for alarm. Not unless it goes up to 500, 600 or more. It would be good for you to plan your next steps after getting the results of your next BTM test. You might then decide to also do the "Alendronate step-down" - no, not claiming credit for this approach - at least not until it is proven to work! 🙂

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Replies to "@rjd, Yes, it was a big relief! My target for CTX is between 150-280 when not..."

@formisc just to clarify for others (and you probably meant this) PTH is parathyroid, not thyroid.

What did you do after stopping the Prolia to lock in the gains ?