← Return to Granulosa cell (GCT) ovarian cancer: Suspect recurrence, how to cope?

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@naturegirl5

@dovebeloved I can feel your angst and fear through your words.

As @colleenyoung noted I experienced a recurrence. That was in 2021, two years after I was diagnosed with endometroid adenocarcinoma, FIGO Grade 1. In 2019 I had surgery - radical hysterectomy with removal of uterus, fallopian tubes, ovaries, and cervix. After surgery the pathology report indicated Stage 1a and so my gyn-oncologist told me that no other treatment was recommended. And yet two years later during a routine cancer surveillance appointment a little polyp-like growth was found on my vaginal cuff, it was removed and sent to pathology. Recurrence. Prior to the recurrence I had no symptoms and so when I got the phone call after the pathology report came out I was stunned and shocked. I could barely walk, think, or talk. I was scheduled for a PET/MR scan, and I was beside myself with fear, sleepless nights, and anxiety. I was 69-years-old at the time so much older than you are now. I could just hear people saying (they never did), "you've had a good life" as if I was going to pass away soon. It was just awful. Once I knew what I was dealing with (the PET/MR showed no evidence of disease so no metastasis) I saw a radiation oncologist and I was set up for external and internal radiation therapy. It was when I knew how this recurrence would be treated that I started to settle down and feel less fearful.

Here is what I've learned. Sadness, fear, crying, going back to the computer over and over again trying to find answers to questions I could not even articulate were all part of the process. No one wants to feel these emotions. We want certainty in our futures and with cancer and the fear of recurrence there is no certainty.

I learned about Hope. Hope is optimism with a plan. Optimism alone is just a thought. A plan has goals and it is action-oriented. So that is why, I figured, I felt less fearful once I saw the radiation oncologist. There was a plan in place that I would follow. So I could be optimistic and schedule the radiation appointments.

I'd like to share this. Please consider being compassionate with yourself. This is a very difficult time for you. I've learned that emotional support is key to going through this. Do you have family who support you? A partner? Close friends? I found solace in reading material from my religious tradition. Do you have a religious and spiritual tradition?

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Replies to "@dovebeloved I can feel your angst and fear through your words. As @colleenyoung noted I experienced..."

Thank you for sharing your experience and taking the time to reply! I do have a support team it’s my mother and brothers & sisters. My brother says it’s something I eat that’s getting me sick so that I need to eat healthier. One of my sisters said maybe God wants to give me a great testimony & share hope & encouragement to others. Another sister said that it’s a wake up call and that I should take myself more serious and take care of my health. My mother buys me expensive, random supplements that “ cure “ cancer naturally! They all mean well. It’s hard to please them and agree to their opinion or their suggestions of how to live my life. And when my mother calls me to ask me if I’m drinking the stuff she gives me and I say No, she gets angry and stressed out because she wants to cure me but I don’t cooperate.
I am a believer of Jesus Christ, and I pray and read daily to get wisdom and courage to phase this difficult season . I have a heavy burden to be strong for my family so they don’t fear or that I don’t become a burden to them. When all I really want is to be in peace through this storm and trust the process one day at a time. That’s why I’m here searching for different perspectives from real cancer warriors. I love my family but right now I don’t want to be told what I should or shouldn’t be doing, I just want to understand what I’m going through and be mentally ready for the results.

So beautiful written and inspirational! Thank you Helen for sharing your thoughts and your journey with us. 💗