← Return to If you have tapering problems below 5 mg this might explain why.

Discussion
Comment receiving replies
@sandmason

"My rheumatologist, "my endocrinologist", LOL. Here PMR patients can't even get a referral accepted by any of the very few Rheums. Still, their waiting list is a year. No idea what it would take to see an endo! My primary refuses to believe the PMR diagnosis by my Internist husband and refused to even give me 1mg pills to help me taper. I couldn't even get methotrexate, much less Kevzara. So I muddle along with a few, very experienced, retired internists.

Jump to this post


Replies to ""My rheumatologist, "my endocrinologist", LOL. Here PMR patients can't even get a referral accepted by any..."

Yes ... I apologize for saying that all the time. I mostly repeat what my doctors have told me in the past.

I lived very near to and worked at a large university hospital in a relatively small town in a rural state in the Midwest. I had easy access and knew many of my doctors before I saw them as a patient. My primary care doctor was my neighbor. I actually worked with my rheumatologist occasionally and she would stop and ask me how I was doing whenever we crossed paths. My ophthalmologist had kids who were on the same tennis team in high school as my kids. My doctors were more than that ... I considered them to be my friends too.

My first rheumatologist and I didn't get along very well because of how much Prednisone I was taking. I didn't seek a new rheumatologist but the one I ended up with stepped in at one of my visits. She requested that I stop taking Prednisone for a few days so she could evaluate me. There were at least 15 other rheumatologists in the rheumatology department that I could have seen.