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Who else has BFS and can’t stop thinking about ALS?

Mental Health | Last Active: Sep 22 10:31am | Replies (9)

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@vicscats

What is bfs

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Replies to "What is bfs"

Benign Fasciculation Syndrome. It is basically twitching anywhere on your body and at any time however it is benign. This means it is not harmful although many report cramping and some pain / soreness associated with it.
I myself twitch almost non stop in my legs and my thighs feel sore as a result. I have twitching in other areas of my body too but just not as frequent as my legs.
This is normal but there are folks that have this that have no soreness or pain, just twitching.
EMG testing is often used as well as other tests and examinations to determine what you may have or not have. My experience was EMG, MRI’s, extensive blood testing and even a CT scan. All came back normal so the neurologists defined it as BFS. It somewhat of a process of elimination.
I have been a mental wreck, I am not lying but have to learn to move on and accept I may have this for life. It could go away but at the same time, it may not. People have had it for years and for some, it goes away in months. No one knows why but anxiety doesn’t help it.
There is a chance that this could be a “long covid” reaction as many have reported that this is suspected for them. I had covid so it could be but really nothing I can do about it at this point.
I wish you well and just remember, most twitching is harmless so don’t go down the rabbit hole as I did of checking everything on line. It doesn’t help, trust me!