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DiscussionStruggling with decision to move forward with Allogeneic Transplant
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Sep 22 10:04am | Replies (35)Comment receiving replies
Replies to "Hi Deb - I was 57 when I was diagnosed with AML. I didn’t really have..."
@aml2018 - Thank you for sharing your experience and the amount of caregiving that was required as well as your day to day life years after transplant. I know the importance of staying positive but feel it must be balanced with knowledge of other possible outcomes - for the patient but also so important for the caregivers. My doctor has just begun the donor search for my BMT required a due to the extensive chemotherapy received for secondary CNS lymphoma that resulted in my bone marrow depletion. Thankfully in remission now and just worrying over the impact of this transplant on my loved ones so very much appreciate your sharing. Take care and best wishes for more good days than bad.
Hi aml2018,
That is very helpful advice thank you. My tentative admission date is October 30th. My doctor had advised only having one caregiver for the first 100 days (my husband) so I had less exposure to infection etc. But you have definitely helped me realize we need a firm backup plan in case it is too much for him or if he becomes sick or unable to care for me. Thanks so much. I appreciate the advice.
Welcome to Connect @aml2018. And welcome to the growing ‘club’ of BMT members. You’re one year ahead of me with your transplant but same issue…AML with no other option but transplant. It was an arduous journey but I’d do it again in a heartbeat. Thank you for sharing your experience in Connect.
Other conversations you might like to join are:
Snapshots of hope: Life on the other side of transplant. https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
Chronic GVHD ~ Let’s talk about it
https://connect.mayoclinic.org/discussion/chronic-gvhd-lets-talk-about-it/
Were you able to return to work at your new job?