Pelvic pain - Persistent genital arousal disorder (PGAD)?

Posted by dancing1 @dancing1, Dec 10, 2022

Has anyone been diagnosed with P-Gad! Would love to hear from you if you have.

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@mla26

I am a male and was diagnosed with a pelvic floor dysfunction and Prudendal neuralgia. However a MRI indicated that there was nothing wrong with my Prudendal nerve. My main problem is pgad systems. If I am vertical (standing, walking) I experience pgad. If I am horizontal (laying down) I am not bothered. It is like in the vertical position there is a pressure on my pelvic floor. In the last year I have lost a lot of weight. The mussel mass in my upper legs and waist area is quite light. I am wondering if the loss of mussel mass has allowed nerves in the pelvic floor to be irritated and causing pgad? I have not received a good answer on this. Anybody else experience this problem?

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Have you consulted with a pelvic floor physical therapist?

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@mmalone1804

You don’t say what exactly your symptoms are, that seem to be relieved when you are horizontal. I have not been diagnosed with PGAD, but my symptoms of low back pain and rectal pressure and urgency, also go away when I’m not upright. Like you, my doctors do not have answers for this.
I have been treated for pelvic floor issues, but that hasn’t helped.
I also believe it is being caused by something compressing the nerve when I stand. Have you started any treatments?

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I have been searching and trying different treatments for this disorder, but to no avail.

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@mmalone1804

You don’t say what exactly your symptoms are, that seem to be relieved when you are horizontal. I have not been diagnosed with PGAD, but my symptoms of low back pain and rectal pressure and urgency, also go away when I’m not upright. Like you, my doctors do not have answers for this.
I have been treated for pelvic floor issues, but that hasn’t helped.
I also believe it is being caused by something compressing the nerve when I stand. Have you started any treatments?

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Based on what I have experienced and others I believe the pgad symptons (feelings) are due to some issue related to the nerves (perhaps prudendal nerve) in the pelvis. When vertical there probably is some downward pressure on the pelvic floor which could irritate something. When horizontal the problem is much reduced. What type of physician would know about the function or problems of the nerves? It would be good to hear from a physician who could shed more light on this.

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