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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)
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@artemis1886

IVIG therapy is used in treating small fiber neuropathy.
Third one down immune globulin show the doctors this that it is considered a treatment. See below website. They also have a bunch of webinars to listen to. It’s under prescription therapy. Since, I have had avascular necrosis and osteoporosis in both hips from cortisone therapy is not an option for me. I have had four left hip replacements and an actebulum fracture on top of fracturing my pubic ramus. Last summer fractured T7 (in my back) so the doctors are now limiting how much cortisone I get. One side effect from the cortisone I have is glucose levels go high. I am not diabetic.
I hope it works also. I am allergic to lyrica and neurotin so I can’t take either one. My kidneys shut down and can’t urinate then I swell up huge. My mouth itch’s like crazy and I break out in hives. It has sulfa and I can’t take anything with sulfa, sulfites or sulfonamides.
https://www.foundationforpn.org/treatments/

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Replies to "IVIG therapy is used in treating small fiber neuropathy. Third one down immune globulin show the..."
emo | @emo | Sep 19 5:17pm

Yikes! That is a lot to deal with. I really hope it’s effective for you.

My dad had to take prednisone because of an inflammatory arthritis diagnosis (it’s unfortunately the first line treatment), and it is helpful but it can become a nasty drug the longer you take it.

Thanks for the info about IVIG for SFN. I realize this and yet, I dunno, at least between the neurologists I saw locally at an academic medical center and at two Mayo campuses, they really weren’t proponents of it.

I am afraid of gabapentin, Lyrica, amitriptyline, etc. So I’ve just been doing the best I can with PT and a handful of other treatments. But my symptoms are relatively “mild,” as compared to what they could be, which should be a good thing but of course it’s all frustrating to each of us in its own way.

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